The stigma surrounding infertility discourages people from being open about the issue or seeking support from others. (Image: Freepik)
New Delhi: Infertility is a medical condition that affects thousands of people across the world. According to a report, about 60-80 million couples suffer from infertility every year in the world. Out of this 15 to 20 million (which is around 25 per cent) couples are from India. The problem in India can be really burdensome for couples going through it.
Dr Kshitiz Murdia CEO & Co-Founder of Indira IVF told News9, “Facing fertility issues may feel distressing and burdensome to an individual, and there is an added pressure associated with due to existing societal discrimination. The World Health Organisation has estimated that 17.5 per cent of the adult population globally is infertile. Moreover, 33-34 million couples in India alone experience lifetime infertility however, even with these staggering numbers, the topic of infertility is highly stigmatised and misunderstood because of ignorance, societal expectations, family pressure, and lack of awareness.”
“The stigma surrounding infertility discourages people from being open about the issue or seeking support from others. The secrecy surrounding infertility may cause people to feel alone. It is a difficult process and people and society need to work towards that direction. Let’s look at some of the ways in which we can collectively contribute to reducing the stigma around infertility,” said Dr Murdia.
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Ways to reduce stigma around infertility
Education and Awareness: Promoting education and awareness about infertility is crucial as lack of education is a major contributor to stigma revolving around infertility. Not only adults, but teens should also be included in educative programmes around sexual and reproductive health. Addressing misunderstandings and clarifying information can go a long way to dispel myths related to the topic.
Encouraging Open Conversation: The journey of infertility can be an isolating experience for couples. For instance, they may isolate themselves by comparing the struggles they encounter with those of fellow parents. A person who is infertile may experience humiliation, grief, and anger. The emotional distress worsens further since open discussions are not encouraged. When people have an open conversation in a safe environment, they are able to address their emotions and understand that they are not alone in their struggles.
Sensitise Healthcare Providers: Healthcare providers are at the forefront of the battle against infertility by guiding and supporting individuals and couples on their journey to parenthood. Hence, it is important to enlighten medical professionals and encourage them to be empathetic the emotional, psychological, and social dimensions of infertility. This will facilitate the development of a more empathetic approach based on the needs of the individuals thus, helping in the reduction of stigma. This would, in effect, help relieve some of the emotional loads which are borne by their patients. Recognising the emotional impact of infertility can lead to more comprehensive care, ensuring the overall well-being of patients. It goes beyond just treating the physical aspects and includes addressing the psychological and social aspects of infertility as well.
Organising Support Groups: Organising support groups can help couples suffering from infertility to connect with other people who have experienced the same. This would allow couples and individuals experiencing infertility to speak freely about their problems in a non-judgmental setting. The participants can contribute by sharing their stories and experiences. These groups also offer information on infertility, treatment methods and how to cope with the problem. When a community is well-informed, it is easier to avoid misconceptions and discrimination. Support groups can also help in challenging a society that equates parenthood with personal success or self-worth. They challenge the norms associated with infertility by offering alternative narratives and celebrating multiple pathways that lead to fulfilment. Some support groups also undertake educational and advocacy programs meant to make the community better understand infertility.
Organise campaigns to fight the stigma: Campaigns are an effective weapon in the fight for reducing discrimination. Such programmes can be employed to introduce an enlightening and reformative awareness in society. Campaigns can also help in explaining and providing accurate information on infertility as an issue.
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The journey to reduce the stigma around infertility is one that demands our collective commitment and compassion. At its core, reducing infertility stigma is about acknowledging that this is not merely a medical condition but a deeply personal, emotional, and human experience. It is about recognising that every individual’s journey is unique and deserves respect and support. Furthermore, it is about understanding that parenthood can take various forms, and each path is valid and meaningful. Together, we can break the silence, shatter the stigma, and create a world where infertility is met with open hearts, open minds, and open arms. This is our collective responsibility, and it is our duty to support and empower one another on this journey.
